Wed, Feb 5 Update; London

Yesterday was a very busy day. Had a PICC line put in chest, an X-Ray, a MUGA Scan (heart) and an MRI (head).

Resident Doctor visited this morning and informed that both those scans (MUGA & MRI) came back clean & good.

Sue was pretty tired by the evening but they started her on some additional drugs as well as adjusting some dosages of others.

She was feeling pretty good and had a surprising amount of mobility, we even managed to squeeze in her first actual shower in over a month! She felt clean and happy about that.

We are still in Building B, 9th floor.

At time of last update (3pm) she has just gone in for her multi-hour PET Scan over at St. Joseph Hospital.

Diagnosis

Furthering yesterday’s post. Sue now has a diagnosis of Non-Hodgkins Lymphoma. There are many kinds but the good news we received is that Sue’s is very common, there are numerous treatment options, and it’s even curable in a majority of cases.

She now has a dedicated doctor and a real plan in the works. She will not be getting surgery, they will be moving her from Trauma Ward in Building B over to a room in Building C, 7th floor (as soon as a bed is available there) and then once she’s there they will begin first round of Chemotherapy.

The Doctor said that Chemo is the most effective & efficient way to treat this and that she may only need Chemo.

They will be doing numerous additional scans/tests to rule out the possibility of anything anywhere else. But Doctor said even if they find more, the treatment is still the same so they will proceed as planned. Thus far the spine is the only place they have found anything.

The resident Doctor told us today that the type of Chemo she’s getting is one of the easier ones to tolerate and that they don’t intend to send her back to Woodstock Hospital but will keep her here and assess how she responds to the Chemo and she would be sent home afterwards to recover assuming she is responding well.

I’ll post another update once she’s moved to Building C7 or if we receive any further information.

For those who like to randomly visit Sue, just want you all to know she’ll be temporarily at St Jo Hospital all afternoon on Wednesday (from 2pm on) for PET Scan which takes a few hours. I’ll be there with her.

Thanks again everyone for all your amazing love & support! Sue’s gonna kick the shit out of this!

Mon, Feb 3 Update; London

Didn’t want to leave everyone hanging. Today we received a whole bunch new information. I would say the information is “good news”.

The beginning of a real plan are finally being put in place and a lot of puzzle pieces came together. There’s some more tests to be done.

At this current point in time there will be no surgery, other more appropriate treatment measures are going to be used.

We aren’t prepared to share too much more information this evening but I promise we’ll give everyone more details sometime tomorrow. This evening were just updating all the immediate family and “processing” all this new information.

We appreciate all of your support and understanding, everyone has been so helpful.

Sun, Feb 2 Superbowl Update

Hope everyone is doing well. Straight to the point, still waiting.

Brief Doctor visit this morning told her they’re going to put a plan together Monday or Tuesday and will be able to figure things out.

For those of you partaking in superbowl festivities, enjoy! Sue’s waiting for the half time show – only part she cares about.

8:45pm Update: Sue enjoyed the half time show 😉

Sat, Feb 1 Update; London

Good day to all of you. Starting to sound like a broken record over here but … still waiting on biopsy results.

Dr came to visit early this morning mainly to update on no results yet. And he also told her this wait time is pretty normal, often have to wait a week. Always good to know that after its already been close to a week 😉

Sorry we don’t have much else to tell you all but it’s starting to look like it’ll be a quiet weekend.

Tonight I’ll be going back to Woodstock to sleep and be back here in London around noon on Sunday.

Thanks so much to Cody & Brit for lending me their home for the past week, it was a huge huge help!

Alternate Routes Kick Cancers Ass

Whisper Gardiner, Owner/Operator of Alternative Routes and friend of Sue’s is holding a class to show support in kicking this tumor’s ass!

Feb 8th, 08:30 AM â€“ 09:30 AM

Strong for Sue – HIIT Circuit

On Saturday February 8th, our regular HIIT Circuit class is going to be STRONGER then EVER! We are going to bust out a serious workout so that we can send Sue our Strength and kick Cancer’s Ass TOGETHER! We are in her corner and we want her to know we are Stronger Together! She’s one of us and we look out for each other!  If you want to show Sue your Love and Support, show up, work hard and bring a donation to help her and her family through this challenging time!  If you can’t join us for the workout, we will be accepting donations in person or by EMT to:

info@alternate-routes.ca

Edit: My apologies if anyone thinks the above message means anything has changed regarding Sue’s condition or diagnosis. Nothing has, I will post ASAP if anything does. Everything is still the same as Jan 31 Update. Expect another one sometime Sat afternoon.

Fri, Jan 31 Update; London

A Doctor visited Sue late this morning and informed her they still don’t have the biopsy results and that they have been sending requests to the biopsy analyst and haven’t heard back from them yet.

So, as yesterday was, we have no real updates to share with everyone, just more waiting.

They have also fed her lunch at 12.30pm and haven’t done any surgery prep on her, so nothing today.

I won’t bother to send our any text updates until we have some actual concrete information or progress to share (such as scan results).

In the meantime I’ve been doing some research based on the little information we currently have that I have been collecting here if anyone is interested.

Thanks so much for everyone’s support!

Wed, Jan 29 Update; London

It’s 12:30pm. Sue had another good night/sleep and another bath. Yay to being clean! Says she almost feels normal for once today. Thanks Sharron & nurses!

There is little new information so far today, will probably be a pretty quiet day. Dr visit this morning around 6am said they are just waiting on results of the biopsy and are hoping to have them today.

No mention of the bone scan today.

They just fed her lunch so definitely no surgery any time soon.

As of 10pm they haven’t cut her off her food or preped her with IV. And no further updates. Hopefully some info in the morning. Good night everyone!

Tues, Jan 28 Update; London

Sue doing not bad today. Had a decent sleep.

At 3:15pm Sue has returned from CT Assisted Biopsy. She said it went well and wasn’t painful or nearly as bad as she expected. The tech told her he thinks he got a good sample.

She is ordered to remain on her back until 4:30pm. At the moment she isn’t in any additional pain more than before she went down.