Sorry it’s been a few days since update. These will probably slow down a little bit, once every few days – a week unless there’s anything urgent to be shared. We appreciate everyone checking in.

Sue’s been doing pretty good these past days since we got home. No major symptoms so far. Legs a little sore today but otherwise in a good mood and able to function reasonably well. Yesterday she ended her “burst” round of Prednisone (100mg for 10 days).

For those wondering (as some people have been asking), the Spinal Tap did not happen Monday morning. At the moment it’s just a back-n-forth thing with the hospital to try to figure out when the correct appointment date is as they told us the Monday was rescheduled, but not to what date.

We’re both still quite exhausted from all the chaos/stress of the past many weeks, but we are getting the house back to normal order, a little bit each day taking caution to not over do ourselves.

Sue’s more than happy to have visitors most days, but as some may already be aware, her immune system is compromised – both from the cancer itself and then in addition, from the Chemo. We were told that if Sue gets a fever (anything about 38C) it’s an immediate trip to the ER with a likely overnight stay while they stabilize it.

We ask if you happen to have a cold/flu or recently around someone who does, perhaps come another day. For those that want to be cautious while here we have gloves, masks, hand sanitizer, etc.

Thank you all once again, the support that Sue has been receiving throughout all of this has been amazing. It would be infinitely harder without each and every one of you awesome friends.