A Doctor visited Sue late this morning and informed her they still don’t have the biopsy results and that they have been sending requests to the biopsy analyst and haven’t heard back from them yet.

So, as yesterday was, we have no real updates to share with everyone, just more waiting.

They have also fed her lunch at 12.30pm and haven’t done any surgery prep on her, so nothing today.

I won’t bother to send our any text updates until we have some actual concrete information or progress to share (such as scan results).

In the meantime I’ve been doing some research based on the little information we currently have that I have been collecting here if anyone is interested.

Thanks so much for everyone’s support!

Dr visit this morning said biopsy results not back yet, most likely surgery on the weekend.

Still no word on bone scan and haven’t heard anything from family Doc.

It’ll probably be a pretty quiet day again today and tomorrow. More waiting, our favorite …

It’s 12:30pm. Sue had another good night/sleep and another bath. Yay to being clean! Says she almost feels normal for once today. Thanks Sharron & nurses!

There is little new information so far today, will probably be a pretty quiet day. Dr visit this morning around 6am said they are just waiting on results of the biopsy and are hoping to have them today.

No mention of the bone scan today.

They just fed her lunch so definitely no surgery any time soon.

As of 10pm they haven’t cut her off her food or preped her with IV. And no further updates. Hopefully some info in the morning. Good night everyone!

Sue doing not bad today. Had a decent sleep.

At 3:15pm Sue has returned from CT Assisted Biopsy. She said it went well and wasn’t painful or nearly as bad as she expected. The tech told her he thinks he got a good sample.

She is ordered to remain on her back until 4:30pm. At the moment she isn’t in any additional pain more than before she went down.

Latest Update: 5:25pm

Sue is not going for surgery today. She has been switched to a different Doctor (Bailey), who has changed the game plan. He wants a biopsy before they decide to open her up.

It is expected to be CT Assisted biopsy and “should” be Tuesday or Wednesday but “most likely” Tuesday.

No explanation was given as to why Dr was switched but nurse did say this Dr is a bit more particular of how he wants things done.

We have arrived in London. Sue is being prepped for “on-call” surgery tomorrow. She should know sometime in the morning before lunch (on 27th) whether she’ll be going for surgery.

The Dr who visited us said she can’t say if they are doing the actual surgery tumor removal AND biopsy in one like they’ve been suggesting the past few days. They may still do only a biopsy with needle. They always prefer to have a biopsy first because it decreases risk in tumor removal if they know what they’re working on.

She said this information won’t even be decided til sometime in the morning, Dr’s arrive at 7am, figure out everything that needs to be done for the day, decide what proceedures they will do that day and who is going for them.

Sue had a good sleep last night. Managed to have a full bath yesterday too, feeling fresh and clean and happy about it (thanks Kelly & Erin!). Hips are bugging her a lot so far today, sadly the Hydromorphone doesn’t help much with that (doesn’t do much for muscle pain).

Had a visit from the family doctor again. No new news, she’s sticking with hopefully Monday on the London bed.

No results on bone scan yet but Doc says as soon as there is they will be sent immediately to her and she will update Sue. This is expected Monday morning.

As to what to expect for surgery: Dr says Sue will likely remain in London Hospital for a few days after surgery for some initial rehab.

If she needs more days beyond the first few in London she will likely be sent back to Woodstock Hospital for a few more but is expected it won’t be much more than a week before able to go home and continue a monitored recovery from there.

Update 7:40pm: We are in the transfer vehicle en route to London (Victoria), they got us a bed.

Update 8:50pm: In London (Victoria), Building B, 9th Floor, RM 216.

Sue had a good night last night, got some sleep, we’ve gotten better control of her pain med distribution now and she’s been given more flexibility on how often and what dosages she gets.

We were happy to see her family Dr come in for a visit around 10:45 this morning.

There’s no updates from the bone scan yet. Dr confirmed sue will definitely be getting surgical biopsy + removal of as much tumor as possible likely within a few days after we get the transfer to London. She also said that this procedure will most likely reduce her pain substantially.

Unfortunately she also informed us London still doesn’t have a bed for Sue and most likely won’t until Monday at this point. As such, this will likely be an uneventful weekend unless we hear results from bone scan tomorrow.

Family Dr says she will be back in for another visit tomorrow some time regardless of whether or not there is any more info to share.

Had bone scan part 1 this morning at 09:00 (20 min), part 2 around 12:00 and took 1 hour.

London confirmed 24 – 48 hours bed, move will be at moments notice but usually the know by noon each day if she’ll move.

London also said they wont be doing the CT Assisted Biopsy with needle, instead they will do surgery and get Biopsy as well as remove bits of tumor to relieve pressure on nerves; should happen sometime during next week (no date yet).

Some people have been asking size of tumor, we asked Dr today who said basically covering as well as inside of the L3 vertebrae, bone has been eaten away. They will possibly need to fuse some of this bone during surgery.

Bone scan results won’t likely be given to us until Monday.

UPDATE 1: A nurse told us this late afternoon that London is rammed and we might not get transferred until Monday.

Update 2: Some people have asked if she should be walking to the bathroom on her own (is it okay for her back). We asked Dr, who says yes 100% they WANT her to be, otherwise muscles will seize and sugery will be more difficult and recovery longer. She also said the surgery for the biopsy is routine and they know exactly what they’re doing/experienced.

Sue wanted me to add a footnote today: “fuck all this”